Safe Links

When a cancer diagnosis touches your life, or someone you love, it leaves you feeling anxious and confused. It may lead you to reach out to any website that offers a possible "snake oil cure". We only include information that has been proven to be safe and effective by the medical community. Our Medical Advisory Council recommends the following websites:


All Cancer Types Back to Top ^

American Cancer Society
Most recognized global site for cancer that is user-friendly. Offers general information as well as specific overviews of types, risk factors, diagnosis, early detection, treatment, a 1-800 number and live chat.

American Institute for Cancer Research
This user-friendly website includes resources for cancer patients and survivors. Provides information on ways to reduce cancer risk, recommendations on cancer prevention, and information on on-going and up to date research.

Cancer Support Community provides information for treatment decision-making, support groups and other resources. Mental health professionals facilitate online support groups.

I'm Too Young for this
Directed at the young adult population providing support directories, forums and quick links related to various issues and specific cancer organizations.

LIVESTRONG
Worldwide patient support based foundation that provides information on fundraising efforts both on the community level as well as organizational level. Connection with social networking via Blog, iPad App and Facebook and provides one-on-one support plus a Care Plan 'survivorship' guide.

Mayo Clinic
Mayo Clinic is a nonprofit worldwide leader in medical care, research and education for people from all walks of life. Cancer treatment and information can be found under Disease and Treatments. Also has information on complementary and alternative medicine.

Memorial Sloan-Kettering Cancer Center
Excellent cancer resource that includes information on complementary and alternative medicine, herbs and botanicals. Includes fact sheets, user tips and research information.

National Cancer Institute
Comprehensive cancer website for providers and patients. Includes information on cancer topics (A-Z), up to date research, statistics, resources and articles. Less user-friendly but important information may be found here.

The National Center for Complementary and Alternative Medicine (NCCAM) - The Federal Government's lead agency for scientific research on complementary and alternative medicine.

National Coalition for Cancer Survivorship developer
Provides information on cancer and public policy including the Comprehensive Cancer Care Improvement Act (CCIA), its premise and goals. Includes information on cancer advocacy and resources such as communicating with your healthcare team, employment rights, and insurance issues. Of particular note is The Cancer Survival Toolbox: a comprehensive audio program that is given to newly diagnosed patients and those ending treatment.

NCI Clinical Trial Information
Information on how to find a clinical trial related to specific diagnoses. Learn the how, what and why of clinical trials, results of recent studies by type or topic.

Patient Advocate Foundation
Provides patients with arbitration, mediation and negotiation to settle issues with access to care, medical and job retentions related to their illness. Offers resources and information inclusive of webchat, webinars, encrypted email, etc.

Young Cancer Spouses
Dedicated to helping the spouses of adults with cancer share information, support and experiences. Provides information on ways for the caregiver to take care of themselves from sleep issues to accepting or asking others for help.


Bladder Cancer Back to Top ^

Bladder Cancer Advocacy Network
Co-founded by bladder cancer patient and his family, this site provides quick links to FAQ's, medication updates, clinical trials, fundraising efforts/events, mailing lists, volunteering, etc. Geared towards and provides information for the newly diagnosed, those undergoing treatment and those in the post treatment journey.

Urology Care Foundation is committed to promoting urology research and education. They work with researchers, healthcare professionals, patients and caregivers to improve patients' lives. The Urology Care Foundation is the official foundation of the American Urological Association, an organization of roughly 20,000 urologists. Their website provides information on bladder cancer, clinical research trials, and frequently asked questions.


Brain Cancer Back to Top ^

American Brain Tumor Association
Provides comprehensive information to better understand the disease from anatomy of the brain to symptoms, tumor types, risk factors, and terminology. Dedicated area directed to those caring for children or adolescents with brain tumors. Provides medically based information from diagnosis to treatment options that are easily understood as well as ways to assist the patient returning to their life.
Includes treatment options, support, resources and information for caregivers.

National Brain Tumor Society
"How to" links on finding support and obtaining answers regarding symptoms, tests, treatment options and how to better communicate with your doctor.


Breast Cancer Back to Top ^

Breast Cancer.org
Comprehensive website that provides an understanding of terms, tests and treatment options in an easy to understand format. Includes up to date news on current research and issues, "Think Pink Eat Green" nutritional information that may reduce the risk of breast cancer or recurrence. Website is bilingual and includes online blog, discussion board, events and chat room.

Bright Pink is a national non-profit focusing on prevention and early detection of breast and ovarian cancer while providing support for high-risk individuals and those who receive a diagnosis. The organization is especially for young women in their 20's or 30's.

Faces of Metastatic Breast Cancer
Provides interactive support utilizing pictures and videos of those living with or supporting someone with metastatic disease. Includes an interactive discussion board.

Knitted Knockers is an organization that provides free washable, lighter and softer knitted prostheses for women who have had mastectomies without reconstructive surgery. Patterns are also available on their website. Contact the local organization at knittedknockersofthefoxcities@gmail.com to inquire about receiving free knitted protheses that can be worn with your own bra (available in waterproof material).

Komen for the Cure
Easy to navigate site provides a comprehensive guide to understanding breast cancer including basic information, statistics, risk factors, information for men, and integrative/complimentary therapies. Includes online blog and message board.

Living Beyond Breast Cancer
Provides information on breast cancer from the basics through treatment to the newest clinical trials and research and beyond to give the patient what they feel gives optimal quality of life. Includes survivor helpline, webinars, conference information, online brochures/guides, and Body and Soul: an interactive online community discussion and informational board.

Metastatic Breast Cancer Network
Provides information related to diagnosis, treatment, clinical trials, glossary of terms, public service spotlights and expectations. Includes patient support matches, supportive home services, retreats, and financial assistance.

Mothers Supporting Daughters with Breast Cancer
Provides mothers options to work one-on-one with a mother that has a daughter with the same type of disease/treatments. Also offers support to the daughter if she requests it.

Pink Party Breast Cancer Foundation, Inc. helps local (Fox Valley area) patients (women and men) struggling with breast cancer. Pink Party BCF raises funds to help local families in need and to donate to community breast cancer service agencies such as counseling, genetics, mastectomy supplies, etc.

Pink Ribbon
Provides information on sources of support, the ABC's of breast cancer, lifestyle and possible adjustments throughout the disease process, research being conducted, donation links, blogs, event calendar and support forum.

Sisters Network (African American Breast Cancer)
National African American breast cancer survivorship organization that provides information on current news, medical topics, updates, and subject matter related to the African American population. Includes programs and initiatives including financial assistance.

Triple Negative Breast Cancer Foundation
Provides links to risk factors, clinical trials, survivorship, questions to ask healthcare team, webcasts and forums. Includes a helpline in partnership with CancerCare organization. Videos and webinars are available, i.e. (Un) Common Knowledge, which provide varied perspectives on TNBC as well as informational updates on symposiums, public service spotlights and teleconferences.

Wisconsin Breast Cancer Coalition offers support and information on clinical trials. Download their brochure.

Young Survival Coalition
Age appropriate website providing information on understanding breast cancer, glossary of terms, clinical trials, myths and facts, events and ways to give. Includes online discussion board, chats and forums, 'Face 2 Face networking' in partnership with Meetup.com, and a 'Resource Kit' for newly diagnosed patients. Also offers a 'Post treatment navigator' to guide patient through the after effects of treatment, expectations and worksheets to use as a journal or personal care plan.


Childhood Cancer Back to Top ^

American Childhood Cancer Organization is a national organization dedicated to improving the lives of children and adolescents with cancer and their families. The website provides information, awareness/advocacy and research assistance.


Colorectal Cancer Back to Top ^

C3: Colorectal Cancer Coalition
Comprehensive information for patients whether newly diagnosed, undergoing treatment or in the post-treatment phase. Includes webinars, and clinical trials.

Colon Cancer Alliance
Easily navigated website with comprehensive/bilingual information for newly diagnosed patients including FAQ's, staging, treatment options, clinical trials, quality and end of life issues as well as online support options. Resources listed for family and friends.


Gynecological Cancer Back to Top ^

Foundation for Women's Cancer
Comprehensive website for those newly diagnosed including educational options, awareness, research and events. Includes information on cervical and vulvar cancer, resources, clinical trials, programs and research opportunities and prevention ideas.

National Cervical Cancer Coalition
Information on cervical cancer including screening, prevention, HPV, glossary of terms, and information on related cancers.


Head and Neck Cancer Back to Top ^

Esophageal Cancer Awareness Association
Dedicated to patient and support system awareness. Includes diagnosis, staging, treatment and questions to ask the medical team. Also includes information on returning to quality of life, expectations and online chat.

Esophageal Cancer Education Foundation
Provides and educational and research base for those diagnosed with the disease. Offers services including newsletter, hotline and support groups.

Support for People with Oral and Head and Neck Cancer
Dedicated to survivors newly diagnosed, undergoing treatment and current survivors. Provides information for patients to become more aware, educated, and to make informed decisions. Includes publications, support group options and extensive resource listings.


Kidney Cancer Back to Top ^

Kidney Cancer Association
Internationally recognized site that provides information on finding a medical team, hotline help, treatment options and resources, terminology, clinical trials, publications, literature, drug information, research, media news and events, and online/live support.

National Kidney Foundation
Leading organization in the United States dedicated to the awareness, prevention and treatment of kidney disease. Provides education on kidney transplantation and donation, health guides and terminology, cancer prevention and detection, patient/peer support, nutrition, patient and family resources.


Liver Cancer Back to Top ^

American Liver Foundation
Dedicated to advocacy, education, support, and research. Includes information on various types of liver disease, FAQs, organ donation, support, educational resources, clinical trials, and glossary of medical terms.


Lung Cancer Back to Top ^

Lung Cancer Alliance
This easy to navigate website features information on risks, types of lung cancer and staging, glossary of terms, treatment options, side effects, and questions to ask your medical team. Also provides clinical trial information, support groups, inspirational stories and financial information.

LUNGevity Foundation
Provides information on current research, news, input from medical professionals, resource/support for survivors and caregivers, and blog for online communication.

National Lung Cancer Partnership
Advocacy organization co-sponsored by UW-Madison and founded by doctors, researchers, survivors and advocates. Offers information for patients and caregivers, advocates and healthcare researchers.

The American Lung Association can help you navigate your journey through this disease. Their website will walk you through what you need today including online support groups.


Leukemia, Lymphoma and Multiple Myeloma Back to Top ^

The Leukemia & Lymphoma Society
Excellent resource for learning more about the different types of disease. Includes connections via online chat or email. See Local Support for information on the group that meets in Appleton. Bilingual with additional link to a Canadian website that can be translated to French.

Lymphoma Research Foundation
Informative resource for patients, including current research, stories from the community, educational information about the disease, clinical trials, and financial assistance.

Multiple Myeloma Research Foundation
Research-based website spotlighting the most current medication, research advancements and studies, clinical trials and collaborative care models. Includes
information on the coMMpass project and study initiatives.


Lymphedema Back to Top ^

National Lymphedema Network
Concise website that provides information on finding a therapist, treatment centers, FAQs, support groups, insurance issues, and a resource guide.

Lymphedema Research Foundation
Resource for information on lymphatic disease, research, clinical trials, patient registry, forums, blogs, resources, publications, webinars and telecasts.


Malignant MesotheliomaBack to Top ^

Malignant Mesothelioma is best researched on unsponsored websites.  Our Medical Advisory Council recommends the following information from the American Cancer Society at http://www.cancer.org/cancer/malignantmesothelioma/detailedguide/index or the University of Wisconsin/UW Health at ( http://www.uwhealth.org/health/topic/nci/malignant-mesothelioma-treatment-pdq-treatment-patient-information-nci/ncicdr0000269299.html)


Ovarian Cancer Back to Top ^

Bright Pink is a national non-profit focusing on prevention and early detection of breast and ovarian cancer while providing support for high-risk individuals and those who receive a diagnosis. The organization is especially for young women in their 20's or 30's.

National Ovarian Cancer Coalition
Comprehensive website providing information for newly diagnosed individuals, survivors, and caregivers. Includes medical information on what is ovarian cancer, symptoms, glossary of medical terms, testing, treatment, and clinical trials. Also Includes informative section on talking with your physician.

Ovarian Cancer National Alliance
Provides educational information for those just diagnosed, online support, initial steps to take, clinical trials and resources, and a webinar series.

Ovarian Cancer Research Fund
Information on current/ongoing research data and survivor support.


Pancreatic Cancer Back to Top ^

National Pancreas Foundation
Includes information on both pancreatitis and pancreatic cancer, from understanding the disease to genetics, treatment, complimentary therapies and nutrition.

Pancreatic Cancer Action Network
Comprehensive website for understanding pancreatic cancer. Includes survivor stories, science/research behind it, treatment options, and clinical trials,
advocacy, financial information and the programs/services available.

Pancreatica
An easy to navigate website that includes FAQ's, medical publications, information on neuroendocrine and carcinoid tumors, and an online blog. Also provides
information on ways to connect with a counselor or survivor.


Prostate and Urologic Cancer Back to Top ^

Prostate Cancer Foundation
A comprehensive website with easy access to current research breakthroughs, newly diagnosed patient's questions and answers, treatment options, side effects, clinical trials, detection and prevention. Includes information on getting care close to home, free guides and downloads, and decision-making tools.

USTOO Prostate International Education & Support
Website includes current news and events, newsletter, support groups and chapters, online discussion and wiki links. Provides information about the disease such as statistics, treatment options, advanced disease, clinical trials, news for African American and gay men, resource links including free publications, books, financial information, and specific help for family and companions.

Web MD Prostate Cancer Community is a moderated network of support, tips, and information. For more information visit http://exchanges.webmd.com/prostate-cancer-exchange


Skin Cancer Back to Top ^

Aim at Melanoma
International website with comprehensive information on the four stages of the disease, survivor stories, questions to ask medical team, current news, the most recently approved medications, discussion board, symposiums, clinical trials, nurse- on-call lines, email connection and an extensive A-Z glossary of terms.

Melanoma International Foundation
Easily navigated website with extensive information on melanoma from facts to prevention, understanding pathology and biopsy results, treatment options and an A-Z glossary of terms. Provides global resources, treatment centers, publications, clinical trials, extensive webinars and forums.

Melanoma Research Foundation
Comprehensive website dedicated to educating, advocating and supporting/participating in research. Provides information about the disease, resources, research, community profiles, chat rooms, forums, blogs and support.

Mollie's Fund provides melanoma awareness and education. Website includes a local UV Index finder and a "Have you checked your skin lately?" app for IPhone/IPad or Android that includes an ABCD mole self-check.

Skin Cancer Foundation
International website dedicated to education, prevention, early detection and prompt treatment of the most common type of cancer. Provides information on warning signs, prevention, skin care tips and tanning warnings. Includes guides to early detection, free screening sites, videos on sun protection and awareness, treatment procedures and survivor stories.


Thyroid Cancer Back to Top ^

Thyroid Cancer Survivor's Association
Comprehensive website created and maintained by survivors. Provides information on disease types/staging, testing and treatment options, support services, clinical trials and guidelines.

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